Heart Kids: Advice I’d Give My Past Self About Having A Baby With A Heart Condition (Part 1)

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“If I’d only known then what I know now” is one of those phrases that we often find ourselves thinking once we’ve gained the wisdom of hindsight. And when you’re raising a heart kid, you might feel this way after weathering each and every storm.

What would you tell your past self, on the day your baby was born, if you had the chance?

When we asked this question on social media, the responses were overwhelming. And they covered a wide range of issues, from staying strong to embracing unknowns.

Here are just a few of the many insightful pieces of advice parents of heart kids wish they could tell their past selves.

Coming up in part 2: More words of wisdom from heart parents on everything from worst-case scenarios to support groups.

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Sean Akers

Hi, I’m Dr. Sean Akers, and I’m a Licensed Clinical Pediatric Psychologist at Children’s Hospital & Medical Center in Omaha. I serve as the primary psychologist for the heart transplant team as well as the coordinator of the Consult Liaison Service. My job is to provide heart kids and their families with support throughout their journey.

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