5 Surprising Issues About Heart Transplant Costs

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When a family first finds out that their child needs a heart transplant, they step into 3 worlds all at the same time.

One world is about learning to cope with the news. Any mom or dad of a heart transplant kid will tell you: You have to become a stronger version of yourself to get through this.

Then there’s the clinical world. This one is made up of all the medical terms, the clinical staff and their roles, the medications, the doctor’s visits. You have to learn to navigate all of that overnight—or what feels like it.

As if that’s not enough, there’s the financial and administrative side of things. Your health insurance and finances have a new significance. And the family has to stay on top of them like they’re running a corporate division.

Children’s Hospital & Medical Center has a team of financial counselors that walk with our families through this maze so they don’t get lost. This could mean calling the insurance company, helping families with fundraising tips or offering a listening ear to a frustrated mom.

I asked a couple of financial counseling experts here at Children’s to share the 5 financial heads ups that tend to surprise heart transplant families. They also shared tips on how to deal with them.

Barb Roessner

Hi, I'm Barb, and I'm a Physician Assistant and coordinator of the Heart Failure and Transplant Program at Children's Hospital & Medical Center in Omaha. I work with patients and families at every step of the journey, from diagnosing their child's heart condition to my favorite part—calling them to say "We have a heart."

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