4 Resources To Help Cover The Costs Of Heart Transplant Medications

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It should go without saying that you cannot put a price tag on saving a child’s life.

But—as parents of heart kids know—this doesn’t mean that a heart transplant isn’t expensive.

In fact, the price of medications after a transplant can easily add up to five figures in just the first six months after surgery.OMAHA_4ResourcesToHelpCoverTheCostsOfHeartTransplantMedications_1

Also read: How Much Does A Heart Transplant Cost?


Also read: Anti-Rejection Drugs: What Do All Those Heart Transplant Medications Do?

Fortunately, there are ways for families to get some much-needed financial help. Here are 4 resources that can help cover the costs of heart transplant medications.

While eligibility for individual assistance programs varies based on a number of factors, I encourage you to reach out to as many different sources as possible.

1. Partnership For Prescription Assistance

About The Organization

The Partnership for Prescription Assistance seeks to help “qualifying patients without prescription drug coverage get the medicines they need for free or nearly free.”

How They Can Help Heart Transplant Recipients

The PPA does not provide direct financial assistance. Instead, it connects patients and their families to available programs based on each patient’s needs.

How It Works

The PPA has a search feature where you can enter your child’s medications and see which assistance programs may be available.

Eligibility Requirements

Eligibility varies from program to program.

2. Patient Access Network Foundation

About The Organization

The Patient Access Network (PAN) Foundation assists “people with chronic or life-threatening illnesses for whom cost limits access to critical medical treatments.”

How They Can Help Heart Transplant Recipients

The Solid Organ Transplant Immunosuppressant Therapy program can help cover the costs of immunosuppressants.

Note: This program was full as of July 21, 2015, but it’s worth checking back to see if the application pool will be reopened.

How It Works

Eligible families may receive up to $4,500 annually to help cover the costs of immunosuppressants after a heart or other solid organ transplant (kidney, liver, lung, or pancreas).

Eligibility Requirements

  • Patients must have insurance that covers the costs of the medications they are applying for assistance with.
  • Patients (or their parents or guardians) must fall below 400% of the Federal Poverty Level.
  • Patients must live—and receive treatment—in the US.
  • The medication must directly treat the disease.

3. Genentech Access Solutions

About The Organization

Genentech is a drug development company. They manufacture the immunosuppressant CellCept® and the infection prevention medication Valcyte®.

How They Can Help Heart Transplant Recipients

Genentech Transplant Access Services can help cover some of the costs of Genentech-brand medications.

How It Works

Co-pay cards can reduce the out-of-pocket costs for CellCept® and Valcyte®.

Eligibility Requirements

  • Pediatric heart transplant recipients between the ages of 4 months and 16 years taking Valcyte® to prevent cytomegalovirus (CMV) disease are eligible.
  • Heart transplant or other organ transplant recipients taking CellCept® to prevent rejection are eligible.
  • Patients must live in the US (excluding Massachusetts) or Puerto Rico.
  • Patients must not be participating in any federal- or state-funded healthcare programs, such as Medicaid.
  • Patients must not be participating in the Genentech Access to Care Foundation assistance program.

4. National Foundation For Transplants

About The Organization

The National Foundation for Transplants “offers hope and help to transplant patients and their families by: providing fundraising expertise and advocacy, promoting organ and tissue donation, and supporting innovative solutions for lifesaving treatment.”

How They Can Help Heart Transplant Recipients

The NFT can help raise funds for a number of transplant-related costs, including medications. They also have a list of prescription assistance programs.

How It Works

Specially trained consultants assist families in fundraising to cover transplant-related costs.

Eligibility Requirements

  • Transplant candidates and recipients are eligible.
  • The fundraising must take place in the US.

Barb Roessner

Hi, I'm Barb, and I'm a Physician Assistant and coordinator of the Heart Failure and Transplant Program at Children's Hospital & Medical Center in Omaha. I work with patients and families at every step of the journey, from diagnosing their child's heart condition to my favorite part—calling them to say "We have a heart."

5 Responses to "4 Resources To Help Cover The Costs Of Heart Transplant Medications"

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  1. Jim Inman

    August 6, 2015 at 10:16 am

    The Children’s Organ Transplant Association (COTA) is also a tremendous resource to help with a variety of expenses related to a transplant, including prescription coverage and other medicines. COTA provides its services at NO COST to our families – 100% of funds raised in honor of COTA kids are used for transplant-related expenses. COTA works with thousands of COTA kids nationwide, and more than $80 million has been raised over 29 years.

    For more information about COTA, please visit http://www.COTA.org

    Jim Inman, Jr.
    Director of Marketing
    Children’s Organ Transplant Association

  2. Pingback: 13 Resources To Ease Caregiver Stress For Heart Kid Parents - smallbeats

  3. Pingback: Fund-raising For The Best Cause Of All: Your Child - smallbeats

  4. Conrad

    December 29, 2016 at 2:12 am

    Hеllo, I enjoy reading аll of your article post. I wanted to write a little
    ϲomment to support уou.

    • Barb Roessner

      December 29, 2016 at 3:27 pm

      We appreciate that, Conrad. Thank you 🙂


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