smallbeats is our way of sharing personal experience, professional wisdom and inspiring stories from children and families living with serious heart conditions.

For Our Heart Kids And Their Families: Goodbye From smallbeats

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Can you believe that we have published more than 300 stories for heart kids and their families on smallbeats?

We’ve explained the basic “ABC’s” of heart conditions, and broken down the intricacies of open-heart surgery. We’ve taken you behind the scenes with our staff, and we’ve shared stories from adults who grew up with congenital heart defects (CHD). And yet, it feels like we could still go on and on for another 300+ posts.

However, there’s that old saying that all good things must come to an end—and that time has come for our blog. Read More

Barb Roessner

Hi, I'm Barb, and I'm a Physician Assistant and coordinator of the Heart Failure and Transplant Program at Children's Hospital & Medical Center in Omaha. I work with patients and families at every step of the journey, from diagnosing their child's heart condition to my favorite part—calling them to say "We have a heart."

Heart Kids: Advice I’d Give My Past Self About Having A Baby With A Heart Condition (Part 2)

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In part 1 of this 2-part series, parents shared advice that they would give their past selves about life with a heart kid.

When we asked this question on social media, we received so many inspirational and thoughtful responses that we couldn’t keep it to just one post.

From finding the right hospital to leaning on others for help, here are even more pieces of advice that parents of heart kids would give themselves if they could go back to the beginning.

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SeanAkers_blog

Sean Akers

Hi, I’m Dr. Sean Akers, and I’m a Licensed Clinical Pediatric Psychologist at Children’s Hospital & Medical Center in Omaha. I serve as the primary psychologist for the heart transplant team as well as the coordinator of the Consult Liaison Service. My job is to provide heart kids and their families with support throughout their journey.

Heart Kids: Advice I’d Give My Past Self About Having A Baby With A Heart Condition (Part 1)

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“If I’d only known then what I know now” is one of those phrases that we often find ourselves thinking once we’ve gained the wisdom of hindsight. And when you’re raising a heart kid, you might feel this way after weathering each and every storm.

What would you tell your past self, on the day your baby was born, if you had the chance?

When we asked this question on social media, the responses were overwhelming. And they covered a wide range of issues, from staying strong to embracing unknowns. Read More

SeanAkers_blog

Sean Akers

Hi, I’m Dr. Sean Akers, and I’m a Licensed Clinical Pediatric Psychologist at Children’s Hospital & Medical Center in Omaha. I serve as the primary psychologist for the heart transplant team as well as the coordinator of the Consult Liaison Service. My job is to provide heart kids and their families with support throughout their journey.