smallbeats is our way of sharing personal experience, professional wisdom and inspiring stories from children and families living with serious heart conditions.

What To Read When You’re Parenting A Child With A Heart Condition

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Raising a child with a congenital heart defect can be challenging—physically, financially, and emotionally. While it might seem overwhelming, there are many resources to help parents cope with these challenges.

One of the easiest things you can do is read. Whether it’s about another heart kid or general parenting advice, a book can give you the support you need. Read More

SeanAkers_blog

Sean Akers

Hi, I’m Dr. Sean Akers, and I’m a Licensed Clinical Pediatric Psychologist at Children’s Hospital & Medical Center in Omaha. I serve as the primary psychologist for the heart transplant team as well as the coordinator of the Consult Liaison Service. My job is to provide heart kids and their families with support throughout their journey.

Facing Tough Times: Words Of Wisdom From Adults With CHD (Part 2)

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I recently shared some words of wisdom in part 1 of this 2-part post from adults who had congenital heart defects (CHD) as children. Since there were so many wonderful responses, I decided to write two posts.

The first contained quotes about seizing the day and loving life. This second one is advice about medical issues and staying healthy.  Read More

BarbRoessner_blog

Barb Roessner

Hi, I'm Barb, and I'm a Physician Assistant and coordinator of the Heart Failure and Transplant Program at Children's Hospital & Medical Center in Omaha. I work with patients and families at every step of the journey, from diagnosing their child's heart condition to my favorite part—calling them to say "We have a heart."

Facing Tough Times: Words Of Wisdom From Adults With CHD (Part 1)

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One message I always try to convey to heart kids and their parents is that they are not alone. It’s easy to feel “different” from other kids, but I never want anyone to feel that way.  Read More

BarbRoessner_blog

Barb Roessner

Hi, I'm Barb, and I'm a Physician Assistant and coordinator of the Heart Failure and Transplant Program at Children's Hospital & Medical Center in Omaha. I work with patients and families at every step of the journey, from diagnosing their child's heart condition to my favorite part—calling them to say "We have a heart."